Whoops!

I hadn't really thought to update this, but while visiting with my mother she made the comment, "Why don't you ever update your blog?" So here it is. For you, Mom!

The last time I saw Dr.Sherriff he decided to change my infusion from every 8 weeks, to every 6 weeks. This was in order to stop me from noticing the stiffness before my infusion was due, and to prevent another episode like the one I had in July (couldn't walk!).

I had this infusion last month sometime. It went well... sort of. The nurse was really awful. Every time I have her, she messes up in some way. This time, she couldn't get the IV in my hand and had to switch to the other. Boo!

For the first time I was able to sign out and leave early. Up till now, I always had to wait one hour post infusion to make sure I was ok.

Since the weather has changed I've noticed more stiffness.

I'm also lowering my prednisone some more. I'm now at 3mg taken in the mornings (before 9am). My eventual goal is to be off it forever.