Bride-zilla! ROAR!

I had my latest infusion on Wednesday. I had to take the day off work to do it, and I felt guilty. But I need this.

I was surprised how much it actually helps. How much better I feel after I have it. Last month there were lots of days when it was difficult to do things, and I feel into kind of a slump around the house. I wasn't tidying up, I wasn't helping contribute. Tim would come home from working all day and I wouldn't have moved off of the couch.

He never complained. He's not like that. But I felt awful about it. So it's better now.

I had the good nurse for my infusion. She got the IV in after the first try, and it was a very relaxed, calm 2 hours.

I found out that they are moving the infusion clinic. To a bigger room! Yay! And we get cable. They really try hard to make the experience a pleasant one.

I spent my last infusion reading bridal magazines. You may call me bridezilla, but I refuse to have a crappy, awful, stressful wedding. I refuse.

All I can say is.... ROAR!

Whoops!

I hadn't really thought to update this, but while visiting with my mother she made the comment, "Why don't you ever update your blog?" So here it is. For you, Mom!

The last time I saw Dr.Sherriff he decided to change my infusion from every 8 weeks, to every 6 weeks. This was in order to stop me from noticing the stiffness before my infusion was due, and to prevent another episode like the one I had in July (couldn't walk!).

I had this infusion last month sometime. It went well... sort of. The nurse was really awful. Every time I have her, she messes up in some way. This time, she couldn't get the IV in my hand and had to switch to the other. Boo!

For the first time I was able to sign out and leave early. Up till now, I always had to wait one hour post infusion to make sure I was ok.

Since the weather has changed I've noticed more stiffness.

I'm also lowering my prednisone some more. I'm now at 3mg taken in the mornings (before 9am). My eventual goal is to be off it forever.